Helen Senderovich
University of Toronto, Canada
Title: Integration of Palliative Care in the management of Parkinson’s disease
Biography
Biography: Helen Senderovich
Abstract
Introduction
Parkinson disease (PD) is an increasingly prevalent terminal illness in a globally aging population. Despite optimal medical management, prognosis remains poor – a fact seldom communicated to patients and/or their families. Evidence suggests numerous benefits of palliative care consultation in advanced PD but to date, their services remain woefully underutilized.
Objectives
To identify specific challenges to accessing and implementing palliative care in patients with advanced PD, and to use this information to formulate recommendations for practice.
Methods
Literature review whereby recommendations for practice were formulated on the basis of primary quantitative/qualitative data and consensus expert opinion.
Results
Accessing palliative care services for patients with PD remains a challenge for numerous factors including prognostic uncertainty, misconceptions about what palliative care is, and difficulty recognizing when a patient is suitable for referral. Strategies to improve access/delivery of palliative care to this population include education and proper discussion about prognosis/goals of care. A team-based approach is essential as we move towards a model where symptom palliation exists concurrently with active medical disease-modifying treatment.
Conclusion
Despite evidence that palliative care has a role in improving symptom control and overall quality of life in patients with end-stage PD, a multitude of challenges exist and this ultimately hinders access to palliative care services. Education to abolish pre-existing misconceptions about the role of palliative care and a movement towards a team-based approach focused on simultaneous palliative and traditional medical care will undoubtedly improve access to, and benefit from, palliative care services in this population.